Privacy Policy

Our Commitment to Privacy


Welcome to Konexx Inc.’s (“Konexx”) website, (the “Website”).  Konexx values your privacy and is committed to safeguarding your personally identifiable information.  This Privacy Policy explains how information is collected, used, and shared with respect to your access and use of the Website and Services (as that term is defined in the Terms & Conditions of Use).


By accessing the Website, and providing your personal information, you are consenting to the information collection and use practices described in this policy, as modified from time to time by us.  If this Privacy Policy is not acceptable to you, please do not use this Website or provide your personal information. If we decide to materially change our Privacy Policy, we will post a new statement on our Website. Therefore, we encourage you to check the date of our Privacy Policy whenever you visit this Website for any updates or changes.

Some of the information we keep on our Web server is information that you volunteer to provide, and some may be collected automatically. Unless you volunteer to submit personal data yourself, Konexx, its affiliates, or third-party vendors will not collect any information from which individual visitors can be personally identified nor will we employ any technology that is aimed at identifying a visitor.


The Personal Information You Choose to Provide


We receive personal information that you choose to provide to us through the Website or through your use of the Services, including in any of the ways explained below.  We also may receive personal information about you when you provide it to other websites that partner with Konexx Inc. to provide the Services (“Data Partners”) or if you participate in patient communities that you access through the Website.  We receive personal information about you from our Data Partners only when you specifically permit them to share such information with us.


You may visit most areas of this Website without providing directly identifiable personal information or revealing your identity. However, in some cases, you may choose to voluntarily provide Personal Information via this Website to register for, or request, additional information or Services. In such cases, we will collect personally identifiable information, such as your name, address, telephone, number, email address, postal code, demographic information (such as age, race/ethnicity, and sex), and/or health conditions (“User Details”). In addition, depending on the services or information you are interested in receiving, we may also collect User Details related to health topics, products or services in which you may have an interest.


Visitors who consent through the Website to learn about clinical trial opportunities may be invited to provide information to determine qualification to be screened for study participation.


If you choose to send information about research opportunities to a friend, we will receive their email address and any information you choose to include in the message.  When you provide us with a friend’s information through our Website, we expect that you have already obtained their consent to provide this information.


You may choose to contact us through links and email addresses provided through the Website.  We will receive your email address and any other information you choose to include in your message.


Information Automatically Collected and Stored


We also receive information about our Web site's visitors through cookies. A cookie is a piece of data or a file that a website can send to your Internet browser which may then store it on your computer. Cookies store information such as the pages you visited, the Website features you used, and the amount of time you visited a page.  We use what is called a “session” cookie on our Website: (a) to allow site visitors to personalize their experience based on information, products, and services that they are interested in, (b) to track a “user session” within a product or service you signed up for, and (c) to keep users from taking part in a survey or voting more than once.  


The analytics cookie is used to collect information about how site visitors use our site to help us improve our site and the user experience.  These cookies are not linked to any personal information that can identify you.  We suggest that you accept cookies because they allow you to get the most out of your Website experience, including registering or logging into the Services you request.  By clicking through the Website and/or registering for Services, that means you have accepted our cookies.


However, you always have the right to say no to the storage of cookies on your computer or to disable and/or delete cookies at any time.  You can visit the Help feature on your browser which can tell you (1) how to prevent your Internet browser from accepting new cookies, (2) how to have the browser notify you when you receive a new cookie, or (3) how to disable cookies altogether.  It is very important that you understand that if you block or otherwise reject our cookies, you will not be able to use any of the Services that require you to sign in.


Some cookies are set on our Website by our Data Partners and these cookies are not under our control.  These cookies may allow site visitors to share content from this Website, for example through Twitter, Facebook, etc.


We receive IP addresses in the normal course of the operation of our Website. An IP address is a code assigned to the device you use to access the Internet by your Internet service provider. We may use your IP address to identify your device so that we can provide a customized service for you.


We also use standard web logs that record basic data about people who visit our Website. The following information is contained in these logs:


  • The date and time of the visit;

  • Data you submit when customizing your bid;

  • The pages of our Website viewed during the visit;

  • The IP address of the computer used to visit the Website;

  • The type of Web browser used to view the Website; and

  • The website visited immediately before coming to the Website.


How We Use Information

We use all the User Details and any other personal information to help create and improve the Website for users and to provide Services.  For example:

  • We may use any User Details and any other personal information to maintain your account and to provide you with the information, products and/or Services you request;


  • We may share User Details and personal information that you provide with healthcare professionals or researchers to carry out your request, such as the sharing of your contact information if you wish to be contacted for a research study;


  • We may use your email address to make notifications to you about the Website;


  • Information we have is used to improve safety and security for you and your content on the Website, including for violation of our Terms & Conditions of Use and policies;


  • We may use information about you for statistical, design, or operational purposes such as to estimate our audience size, to measure aggregate traffic patterns and/or to and understand trends among our users (“Aggregated Data”);


  • We may share the Aggregated Data (which does not contain any information which can identify an individual) with our clinical research partners to assist them in better designing their websites or clinical trials;


  • We may conduct research about our Website, including new features, in surveys or another testing to collect feedback for improving our Website;


  • We may use non-personal data for research purposes to improve research knowledge. In addition, we will make non-personal data available to qualified commercial and non-commercial researchers for various types of research studies;


  • We may also use your User Details or personal information for the marketing and/or promotion of Konexx, the Website and Services, and its affiliates and partners, including their products and services;


  • We will use your information to respond to your inquiries; and


  • Other sites or services may receive information about you and your content if you use our Website on any third-party apps, websites, or other services.

We may use other companies to provide limited services on our behalf, such as Website technical support, sending communications on our behalf, delivery of prizes or rewards, and other services. If we provide personal information to such companies, we only provide the personal information they need to provide us with the service. They are required to keep the information confidential and cannot use that information for any purpose other than to provide services on our behalf and obey the law.


We will not use or release your personal information in a way that is meaningfully different than described in this notice without your prior consent.


Third-Party Use of Your Information


We allow third-party companies to collect anonymous information when you visit the Website and to use that information to serve ads for Konexx’s Services when you visit other websites. These companies may use anonymous information (e.g., navigational, non-personally identifiable information, click stream information, browser type, time and date, subject of advertisements clicked or scrolled over, etc.) during your visits to other websites to provide advertisements about the Services likely to be of interest to you. These third parties may use a cookie or a third-party web beacon, or other similar technologies, to collect this information. To opt-out of third-party vendor’s cookies on other websites, visit the Network Advertising Initiative website, click here


Social Media Plugins


The Website may use social media plugins to enable you to easily share information with others. When you visit our Website, the operator of the social media plugin that is on our Website can place a cookie on your computer, enabling that operator to recognize individuals on their website who have previously visited our sites. If you are logged into the social media website while browsing the Website, social media plugins may permit the social media website to receive directly identifiable information about you that shows you have visited the Website. Social media plugins also allow the social media website to share information about your activities on the Website with other users of their social media website.  Konexx does not control any of the content from social media plugins. For more information about social plugins from social media websites, you should refer to those sites’ privacy and data sharing statements.


GEO-Location Plugins


The Website may make use of certain functionality and services provided by third parties that allow us to include maps, geocoding, places, and other content. This functionality is a functionality of the third parties providing these services, including Google and other third-party vendors like Google. Your use of the geo-location services is subject to these third-party vendors’ terms of use, including Google’s current Terms of Use for Google Maps/Google Earth found here: By using the geolocation services, you are agreeing to be bound by Google’s Terms of Use, or if we use other third parties to provide these services, the relevant terms and conditions of those third-party providers.


Sharing Information for Konexx Inc. and Other Lawful Purposes:

In General: Registered Member Personal Information will be shared by Konexx only for the purpose of educating Registered Members about the availability of clinical trials and potentially eligible clinical trial participants. Konexx Inc. will use the information submitted by registered members to find potentially suitable clinical trials.


Konexx will facilitate an anonymized online conversation between potential volunteers and clinical trial administrators via a web-based messaging system. Konexx will send email alerts to your registered email address with notifications of a new message or new trial match. Konexx will not further participate in the process by which potentially eligible clinical trial participants are accepted into and participate in clinical trials.

Registered Member information also may be used by Konexx or its designees in de-identified form, i.e. a form through which individuals are not identifiable and cannot be contacted, for the purpose of conducting research.

Registered Member and visitor information may also be collected for statistical purposes. Konexx sometimes performs analyses of user behavior in order to measure user interest in the various areas of this Service. We will disclose this information to third parties only in aggregate form.



Children Under the Age of 18.

Our website is not intended for children under 18 years of age. No one under age 18 may provide any personal information to or on the Site. We do not knowingly collect personal information from children under 18. If you are under 18, do not use or provide any information on this Site or on or through any of its features, and do not provide us with any information about yourself, including your name, address, telephone number, e-mail address, or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 18, we will delete that information. If you believe we might have any information from or about a child under 18, please contact


Links to Third-Party Websites


Our Website may contain links to third-party websites. You should carefully review the privacy policies and practices of other websites, as we cannot control or be responsible for their privacy policies or practices. For other Konexx web properties that our Website links to, please review those privacy terms as well, as they may differ from those on this Website.


Disclosures to Comply with Legal Requirements

We may disclose personal information:

  • To conform with the law, respond to claims or comply with legal process served on us (e.g., a lawful subpoena, warrant or court order, or other applicable laws);


  • To enforce or apply our policies or agreements;


  • To protect and defend our or our users’ rights or property, the Website, our employees, users or the public, including fraudulent, abusive or unlawful use of our Website; or


  • If we reasonably believe that an emergency involving immediate danger of death or serious physical injury to any person requires disclosure of communications or justifies disclosure of records without delay.


International Transfers


Konexx provides this Website and its Services from the United States of America. This means that any personal information we receive from or about you through the Website or your use of the Services will be stored on our servers located in the U.S.


You should be aware that not all countries offer the same standards of data protection as those that may apply where you live. However, your personal information will always be treated and used by Konexx as described in this Privacy Policy and the Terms & Conditions of Use.


Our Commitment to Data Security


We have put in place appropriate measures to protect the personal information you provide to us through the Website, through a Data Partner or your use of the Services. For instance, your personal information is kept on a secure, password-protected server in an encrypted format, and the use of removable media, such as a CD-ROM, requires encryption.


The security of your personal information is, in part, your responsibility.  If you provide a password through the Website, you should select passwords that are hard to guess, and you must keep your passwords private.  You should not share your password with anyone and should not store it in an unprotected format, such as taped to your computer or saved in your email.  Use of the Internet, including the Website, is completely at your own risk and is subject to all laws and regulations that apply as well as this Website’s Terms & Conditions of Use. While we will use reasonable efforts to create a secure, safe and reliable Website, the confidentiality of any communication or data sent to or from the Website over the Internet cannot be guaranteed. While Konexx exercises all due caution to protect your privacy, we will not be held responsible for parties who attempt to illegally access this Service and intercept or access transmissions or private communications.




How You Can Access or Correct Your Information


The User Details and personal information you provide will be kept by Konexx for a reasonable period of time for business and legal purposes.  You may access or correct your User Details and any other personal information you provided at any time. 


You can contact the Konexx Privacy Office by sending an email to  Please include your contact information, name of the Konexx Website or Service at issue, and a detailed description of your request or privacy concern.


Choice to Opt-Out


We will provide you the opportunity to opt-out at any time of certain or all contact from us.  To unsubscribe or cancel your registration to the Website you can simply send an email to to unsubscribe or cancel your registration.


California Privacy Rights

Your Privacy Rights: California Civil Code Section 1798.83 entitles California residents who have an established business relationship with Konexx to request information regarding Konexx’s disclosure of certain Personal Information to third parties for their direct marketing purposes. To make a request for such information, you may contact Konexx at


Further Inquiry

Please direct any questions you may have about this Policy to:



Last Updated: April 2019